Know Your Rights Campaign
The Developmental Disabilities Supports Division (DDSD) is excited to join in a nationwide movement to ensure the rights and dignity of all individuals with disabilities, including those with Intellectual and Developmental Disabilities (IDD) in the United States are fully realized.
On January 16, 2014, the Centers for Medicare and Medicaid Services published a Final Rule addressing several sections of the Social Security Act. The Final Rule amends the regulations which govern the Medicaid 1915 (c) Home and Community Based Services (HCBS) waiver programs. These rules are an important step forward in federal policy, supporting inclusion and integration of people with intellectual and developmental disabilities in the community.
The Final Rule applies to New Mexico’s Home and Community Based Services provided through the Developmental Disabilities, Mi Via and Medically Fragile waivers, as well as Centennial Care. All states are required to be in compliance with the new rule by March 2019.
DDSD is launching the “Know Your Rights” campaign which is what we will now call the HCBS settings requirements transition plan and implementation.
In the fall of 2018, the Developmental Disabilities Planning Council (DDPC) announced a new Advocate Rights and Responsibilities Campaign. Building off of the very successful Know Your Rights Campaign, advocate responsibilities are now central, in addition to rights, in the campaign’s message as advocates continue to grow in empowerment and strength.
The DDPC has partnered with DDSD, NM Allies for Advocacy, providers and other advocacy organizations to host Town Halls around the state, beginning in September in Alamogordo. The Town Hall format will once again be used with presentations and panels focusing on the rights and responsibilities of people with disabilities as defined in federal regulations (the Centers for Medicare and Medicaid Final Rule), the Waivers, etc. The Town Halls include interactive presentations about the CMS Final Rule and stories of advocacy, responsibility and success from Waiver participants as well as discussion and conversation with the audience.
Essential Information
Please see the following essential information to learn the basics about this topic.
- Exploratory Questions to Assist States in Assessment of Non-Residential Home and Community-Based Service (HCBS) Settings
- Exploratory Questions to Assist States in Assessment of Residential Settings
- HCBS Settings Requirements: Participant and Provider Validation Findings (2019-11-20)
- CMS Final Rule: Home and Community-Based Settings Regulation – Heightened Scrutiny (2019-03-22)
- CMS Final Rule: Provider Validation Re-Do (2019-01-09)
- CMS Final Rule: Regulatory Requirements for Home and Community Based Settings
- CMS Final Rule: Exploratory Questions to Assist States in Assessment of Residential Settings
- CMS Final Rule: Exploratory Questions to Assist States in Assessment of Non-Residential HCBS Settings
- Know Your Rights: Letter to Waiver Providers, Vendors and Consultants
- Know Your Rights: Letter to Waiver Recipients and Guardians
- Know Your Rights: Fact Sheet
- Know Your Rights: Flyer
Town Hall Meetings
On September 20, 2018 the first Advocate Rights and Responsibilities Campaign town hall meeting took place in Alamogordo, NM for waiver participants, advocates, family members and guardians. The Mayor of Alamogordo, Richard Boss, welcomed the panelists, State staff and audience members while the local Jr. ROTC Cadets initiated the meeting with Honor Guard-Color Flags and Pledge of Allegiance. The well-attended town hall demonstrated a community interest in the Advocate Rights and Responsibilities Campaign and empowered advocates to educate their community and their peers on disability rights, advocacy, inclusion, responsibilities and Federal rules.
See the Know Your Rights: Alamogordo Presentation on Advocate Rights and Responsibilities document for details.
More Advocate Rights and Responsibilities Town Hall Meetings will be scheduled throughout the state over the next year.
On February 1, 2017, DDSD in partnership with the Know Your Rights Campaign Steering Committee began conducting statewide town hall meetings for waiver participants, advocates, family members and guardians.
The purpose of the Know Your Rights town hall meetings is to engage people with disabilities and advocates to strengthen advocacy, raise awareness, and educate communities across the state that people with disabilities are entitled to rights like everyone else. Additionally, the town hall meetings are a forum to inform waiver participants, families and guardians about the Centers for Medicare and Medicaid Services Final Rule: HCBS Settings Requirements.
- Know Your Rights: Town Hall Flyer
- Know Your Rights: Developmental Disabilities Planning Council Press Release
- Know Your Rights: Town Hall Presentation
- Know Your Rights: Protected Persons Civil Rights
- Know Your Rights: HCBS Centennial Care Community Benefit FAQ
- Know Your Rights: Letter from Dr. Ronald Voorhees
Stakeholder Meetings
- Thursday, May 9, 2019 @ 9:30 AM - 12:00 PM — San Juan Center for Independence
- Thursday, April 18, 2019 @ 1:15 PM - 2:30 PM — Embassy Suites Hotel
- Wednesday, April 17, 2019 @ 2:45 PM - 4:15 PM — Developmental Disabilities Planning Council
- Thursday, March 28, 2019 @ 9:30 AM - 12:00 PM — Department of Workforce Solutions
- Thursday, January 10, 2019 @ 5:30 PM - 8:00 PM — Hilton Garden Inn Gallup
- Know Your Rights: Meeting for Stakeholders on CMS Final Rule
- Know Your Rights: Meeting Notice (2017-03-01)
Learn More
Please read the following documents to learn more.
Home and Community-Based Settings
- CMS Final Rule: Slideshow
- CMS Final Rule: Requirements
- CMS Final Rule: Medicaid
- CMS Final Rule: Excluded Settings and Heightened Security
- CMS Final Rule: Exploratory Questions for Residential Settings
- CMS Final Rule: Exploratory Questions for Non-Residential Settings
Know Your Rights
- Know Your Rights: Change Your Life with Human Rights Booklet
- Know Your Rights: SWDC Presentation
- Know Your Rights: Promising Practices for Providers and Early Adopters
- Know Your Rights: Guide to Getting the Community Life You Want
- Know Your Rights: Organizational Change
- Know Your Rights: HCBS Person-Centered Planning
- Know Your Rights: HCBS Rules and What It Means for You
- Know Your Rights: HCBS Rules and What You Should Know
Recent Activity
News Articles
Latest
- Know Your Rights Campaign (November 10, 2016)